Event information

17 March 2017, 11:00-13:00


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Human Rights of Thalassaemia Patients


Hyderabad, India, Banner on a building highlighting transfusions for Thalassemia patient Hyderabad, India, Banner on a building highlighting transfusions for Thalassemia patient

Contextualizing the need to ensure and protect the rights of individuals suffering from thalassaemia with a view towards raising awareness and adopting measures

A high-level panel discussion aiming to shed light on the particular human rights challenges faced by individuals suffering from thalassaemia, including unfair/discriminatory treatment in different environments and to raise awareness with regard to these challenges amongst member states and other actors.

Thalassaemia patients across the world suffer from one of the most serious inherited blood disorders, which is often not given the attention that the patients deserve. Thalassaemia and other haemoglobinopathies are present worldwide and constitute a major public health issue.


  • H.E. Dr Georgios Pamporides, Minister of Health of Cyprus
  • Η.Ε. Ms. Dunya Maumoon, Minister of State for Health of the Maldives
  • Dr. Charis Matsouka, Haematologist, President of the Hellenic National Blood Transfusion Center (HNBTC)
  • Professor Dimitris Loukopoulos, Haematologist
  • Professor Anver Kuliev, former Head of WHO Hereditary Diseases Program, Emeritus Professor of Medicine and Honorary Director of the Weatherall Institute of Molecular Medicine, University of Oxford
  • Professor Gian Luca Burci, Adjunct Professor of International Law, Graduate Institue of International and Development Studies
  • George Constantinou, Member of the Board of Directors of Thalassemia International Federation
  • Representative of World Health Organisation [tbc]


This event is co-organised by the Permanent Missions of Argentina, Bahrain, Cyprus, Egypt, Greece, Lebanon, the Maldives, Morocco and Romania, in cooperation with the World Health Organisation the Thalassaemia International Federation and the Geneva Academy.